{
    "abstract": "Swallowing difficulties have a substantial impact on the burden experienced by care partners of individuals with neurodegenerative disease. Given this, there is a clear need to easily identify and quantify the unique aspects of swallowing-related burden. The purpose of this study was to establish the validity and reliability of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) screening tool in care partners of individuals with neurodegenerative disease.\nSurvey data were collected from an international sample of 212 individuals caring for family members with amyotrophic lateral sclerosis (\nCARES scores demonstrated excellent internal consistency (\u03b1 = .90-.95) and high test-retest reliability (\nResults establish the CARES as a valid and reliable screening tool that can detect burden related to swallowing difficulties among care partners of individuals living with neurodegenerative disease (score \u2265 4). Clinical implementation of the CARES requires the concerted efforts of the larger multidisciplinary team who can collaboratively identify the presence of burden and target the multifaceted sources of burden that a care partner may be experiencing.",
    "authors": [
        {
            "affiliation": "Communication Disorders and Sciences, University of Oregon, Eugene.",
            "firstname": "Samantha",
            "initials": "S",
            "lastname": "Shune"
        },
        {
            "affiliation": "Dr. Kiran C. Patel College of Allopathic Medicine, Nova Southeastern University, Davie, FL.\nCathy and David Husman Neuroscience Institute, Nova Southeastern University, Davie, FL.",
            "firstname": "Lauren Tabor",
            "initials": "LT",
            "lastname": "Gray"
        },
        {
            "affiliation": "New Zealand Brain Research Institute, Christchurch.\nDepartment of Medicine, University of Otago, Christchurch, New Zealand.",
            "firstname": "Sarah",
            "initials": "S",
            "lastname": "Perry"
        },
        {
            "affiliation": "Prevention Science Institute, University of Oregon, Eugene.\nOregon Research Institute, Springfield.",
            "firstname": "Derek",
            "initials": "D",
            "lastname": "Kosty"
        },
        {
            "affiliation": "School of Rehabilitation Science, McMaster University, Hamilton, Canada.",
            "firstname": "Ashwini",
            "initials": "A",
            "lastname": "Namasivayam-MacDonald"
        }
    ],
    "conclusions": null,
    "copyrights": null,
    "doi": "10.1044/2024_AJSLP-24-00253",
    "journal": "American journal of speech-language pathology",
    "keywords": [],
    "methods": "Survey data were collected from an international sample of 212 individuals caring for family members with amyotrophic lateral sclerosis (",
    "publication_date": "2025-01-24",
    "pubmed_id": "39853150",
    "results": "CARES scores demonstrated excellent internal consistency (\u03b1 = .90-.95) and high test-retest reliability (",
    "title": "Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool for Neurodegenerative Disease.",
    "xml": "<Element 'PubmedArticle' at 0x7885027cc770>"
}