{
    "abstract": "Individuals with severe cerebral palsy (CP) often experience various health issues, including feeding difficulties, which can adversely affect their nutritional status and caregivers' quality of life, e.g., more time spent for feeding rather than own selfcare. This study aimed to determine the prevalence of poor nutritional status among individuals with severe CP and explore its role as predictors for caregivers' quality of life.\nThis cross-sectional study was conducted in a government hospital (Cheras Rehabilitation Hospital), Community-Based Rehabilitation (CBR) Program, and Spastic Centre [non-profit organization (NGO)] in Klang Valley, Malaysia. Seventy-one participants with Gross Motor Function Classification System (GMFCS) level IV and V were recruited. Sociodemographic data, health-associated data, and anthropometric data were collected. Caregivers' quality of life was assessed using the Pediatric Quality of Life Inventory (PedsQL) CP module version 3.0 which included domains such as Movement and Balance, Eating Activities, and School Activities.\nMost participants were males (60.6%), with 61 classified as level IV in the GMFCS classification. According to the Eating and Drinking Ability Classification System (EDACS), 59 children were at level IV. In total, 40.8% were underweight according to CP growth chart and 49.3% had mid-upper arm circumference (MUAC) readings below the 5\nPoor nutritional status in individuals with severe CP has been shown to negatively impact caregivers' quality of life. Therefore, a multidisciplinary approach involving nutritional intervention is essential to improve dietary provision and the nutritional status of children with CP.",
    "authors": [
        {
            "affiliation": "Center for Rehabilitation and Special Needs Studies, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.\nDietetics Program, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Sakinah",
            "initials": "S",
            "lastname": "Kamal"
        },
        {
            "affiliation": "Center for Rehabilitation and Special Needs Studies, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.\nDietetics Program, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Nur Hana",
            "initials": "NH",
            "lastname": "Hamzaid"
        },
        {
            "affiliation": "Center for Rehabilitation and Special Needs Studies, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.\nMalaysian Advocates for Cerebral Palsy (MyCP), Subang Jaya, Malaysia.",
            "firstname": "Sazlina",
            "initials": "S",
            "lastname": "Kamaralzaman"
        },
        {
            "affiliation": "Center for Healthy Aging and Wellness, Faculty of Health Sciences, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Shobha",
            "initials": "S",
            "lastname": "Sharma"
        },
        {
            "affiliation": "Department of Nutrition Sciences, Kulliyyah of Allied Health Sciences, International Islamic University Malaysia (IIUM), Pahang, Malaysia.",
            "firstname": "Nurul Hazirah",
            "initials": "NH",
            "lastname": "Jaafar"
        },
        {
            "affiliation": "Paediatric Rehabilitation Unit, Department of Rehabilitation Medicine, Cheras Rehabilitation Hospital, Kuala Lumpur, Malaysia.",
            "firstname": "Phei Ming",
            "initials": "PM",
            "lastname": "Chern"
        },
        {
            "affiliation": "Department of Chemical Sciences, Faculty of Science & Technology, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Nurul Izzaty",
            "initials": "NI",
            "lastname": "Hassan"
        },
        {
            "affiliation": "Faculty of Education, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Hasnah",
            "initials": "H",
            "lastname": "Toran"
        },
        {
            "affiliation": "Department of Biochemistry, Faculty of Medicine, National University of Malaysia (UKM), Kuala Lumpur, Malaysia.",
            "firstname": "Noor Akmal Shareela",
            "initials": "NAS",
            "lastname": "Ismail"
        },
        {
            "affiliation": "Malaysian Advocates for Cerebral Palsy (MyCP), Subang Jaya, Malaysia.\nAcademy of Language Studies, MARA University of Technology (UiTM), Selangor, Malaysia.",
            "firstname": "Ghazali",
            "initials": "G",
            "lastname": "Yusri"
        }
    ],
    "conclusions": null,
    "copyrights": "2023 Translational Pediatrics. All rights reserved.",
    "doi": "10.21037/tp-23-195\n10.1038/nrdp.2015.82\n10.1186/s41983-020-00265-1\n10.1186/s41983-020-00265-1\n10.3390/medicina57060540\n10.2147/NDT.S235165\n10.1111/j.1469-8749.1997.tb07414.x\n10.5455/msm.2017.29.68-72\n10.1590/s0004-2803.201800000-78\n10.4314/jfas.v9i6s.59\n10.7322/jhgd.v30.9974\n10.1016/j.apmr.2012.10.007\n10.1111/dmcn.12796\n10.18203/2349-3291.ijcp20172667\n10.1111/dmcn.13797\n10.1111/j.1365-2214.2011.01327.x\n10.1097/01.mrr.0000054809.81886.33\n10.3390/nu13072413\n10.1001/archpedi.1995.02170190068012\n10.1111/j.1469-8749.2004.tb00508.x\n10.1542/peds.2010-2801\n10.1111/j.1469-8749.2009.03474.x\n10.1080/07303084.1987.10604383\n10.1111/dmcn.12352\n10.1017/S001216220600096X\n10.1177/135910457000100301\n10.1093/ajcn/34.11.2540\n10.1590/s0004-2803.201700000-32\n10.15850/amj.v6n3.1640\n10.47009/ajcpn.2020.8.1.21\n10.3390/nu13093199\n10.1179/2046905514Y.0000000156\n10.1111/scd.12436\n10.1046/j.1440-1754.2001.00693.x\n10.1111/dmcn.14981\n10.3390/nu12030864\n10.3945/ajcn.116.137810\n10.1186/s12883-016-0573-8\n10.4103/AJOP.AJOP_22_17\n10.5114/polp.2019.85041\n10.1007/s11136-010-9751-0\n10.5114/ms.2018.76871\n10.4103/enj.enj_18_22\n10.3109/09638288.2015.1129451\n10.1136/bmjopen-2022-065215\n10.1177/1367493514540816\n10.1016/j.pedn.2018.10.001\n10.3390/ijerph16245145\n10.1080/09638288.2021.1923839\n10.1111/dmcn.15589",
    "journal": "Translational pediatrics",
    "keywords": [
        "Neurological disorder",
        "feeding difficulties",
        "nutritional intervention",
        "poor nutritional status",
        "quality of life"
    ],
    "methods": null,
    "publication_date": "2023-10-10",
    "pubmed_id": "37814717\n27188686\n34071238\n32606703\n9183258\n28484358\n30785518\n23103429\n25982341\n29736993\n22082112\n12601265\n34371923\n7767422\n15230461\n21768315\n3224965\n19811518\n24344767\n16700934\n6975564\n28723982\n34579076\n25309998\n25755853\n31774579\n11532058\n34247401\n32213841\n31640907\n28077375\n27117791\n34836844\n20882356\n26752264\n37012010\n25027158\n30683274\n31888294\n30104938\n34057002\n36974362",
    "results": "Most participants were males (60.6%), with 61 classified as level IV in the GMFCS classification. According to the Eating and Drinking Ability Classification System (EDACS), 59 children were at level IV. In total, 40.8% were underweight according to CP growth chart and 49.3% had mid-upper arm circumference (MUAC) readings below the 5",
    "title": "Nutritional status as predictors for quality of life among caregivers of children with severe cerebral palsy.",
    "xml": "<Element 'PubmedArticle' at 0x788505659940>"
}